HOW CAN YOU HELP PATIENTS PAINT A DIFFERENT
PICTURE?

Starting Treatment Discussions With Broad Strokes

The full reality of hereditary angioedema (HAE) goes beyond physical attacks—encompassing mental strain, logistical worries, personal stress, and professional barriers. Patients may not realize the full impact of their condition, so your discussions can encourage them to open up about their burden of disease and its management.^1,2

Downloading this patient brochure could be a starting point to help patients recognize and verbalize the ways their HAE may hold them back from living a life without limitations.

View Patient Brochure

Steps to Consider for Reframing Your Approach

1. Painting the Full Picture

Possible ways to help provide a complete picture of what your patients face:

• Defining specific treatment goals that go beyond attack control³
• Probing what “normal” looks like for patients³
• Exploring what aspects of their diagnosis are holding them back³

2. Reframing the Treatment Goals

Probing questions can help guide treatment plans by creating an image of your patients’ specific experiences. Questions to consider:

• What choices are you making to avoid attack triggers?
• How has living with HAE affected your career/work opportunities? What adaptations or adjustments have you had to make?
• What compromises have you made to ensure access and coverage for your medication?
• What about living with and managing HAE is holding you back from living a life without limitations?​
• What are your main concerns about lifelong management of HAE?

3. Making Shared Decisions

As a possible next step, collaborating with patients to create an individualized treatment plan can reinforce the big picture perspective. Shared decision making on treatment plans can give your patients a renewed sense of control and a more positive outlook on their future.